Exciting New Project

My Life - Looking Up

If you have been a NWY ASBAH member for a while, you might remember previous projects My Life - Taking Control in 2012 and My Life- Moving Forward in 2015. Well, we have exciting news for you..... welcome to My Life- Looking Up our new lottery funded project!

Keep the morning of Saturday 13th October free in your diaries for our launch party - a fun filled event with a seasonal theme for children and adults, plus information and plans for the year long project. An invitation will be sent to you shortly for this. In the meantime, read on to find out what the My Life - Looking Up project will enable us to do.

Parents of children within our membership have told us that they really value talking to people who have direct experience of bringing up a child with Spina Bifida and/or Hydrocephalus, or of living with the disability themselves. My Life - Looking Up will fund the set up of a new peer support initiative to enable parents of children with the conditions to connect with others in a similar situation with the aim of building support networks.

We are now looking for people within our membership, who perhaps have young children and would like to connect with others, or have an older child and would like to help new and expectant parents, or for people who have the disability themselves and feel they can offer their direct experience to the new buddy scheme. We are at the earliest stages with this so please do get in touch if you would like to be involved in the scheme.

Another way that the My Life - Looking Up funding will be used is to coordinate educational and practical workshops  so please tell us of any workshops you would like us to arrange, It could be anything from the latest research into Spina Bifida and Hydrocephalus to wheelchair dance! Anything is possible...  Workshops will be held regularly throughout the year. Don't miss out on having your say! Just click the button below to put your ideas and requests forward

Thanks to the funding, we will also be starting the new Youth Club scheme. The youth club is aimed at children and young people from year 5 to late teens. To keep the peer support theme going we are welcoming young adults to help as volunteer leaders.  The stay and play session has been extended to include children from birth to year 4, but there is flexibility in the age ranges and all siblings are welcome to join in. Just like the stay and play session, the youth club scheme will be held every other month and involve a variety of activities both venue based and out and about.

Again, we are appealing for your input, so we would love you to get in touch to indicate your interest, put yourself forward to volunteer, or request a youth based activity. 


You can contact us by email at nwyasbah@gmail.com

You can contact us by phone on


You can contact us by mail at;

25 Hornbeam Court, Oxford Avenue, Guiseley, Leeds, LS20 9BW