INFORMATION ABOUT SPINA BIFIDA AND HYDROCEPHALUS
What is Spina Bifida
Spina bifida literally means “split spine”. It is a congenital (present at birth) condition which occurs in very early pregnancy when a fault in the development of the spinal cord and surrounding bones (vertebrae) leaves a gap or split in the spine. The spinal cord does not form properly and may also be damaged. The effects of spina bifida depend on the level of the fault in the spine and which nerves are involved. There may be difficulties with mobility and continence and in some, more severe cases, paralysis below the level of the fault.
What is Hydrocephalus?
Hydrocephalus comes from the greek word “hydro” meaning water and “cephalic” meaning brain. It is caused by a build up of cerebro-spinal fluid (CSF) in the ventricles of the brain resulting in increased pressure. Hydrocephalus can be congenital (present at birth) and caused by, for example, Aqueduct Stenosis or Dandy Walker cysts or it can be acquired after birth as a result of, for example, a haemorrhage (stroke), prematurity, meningitis, a head injury, tumours or in association with spina bifida. Sometimes the cause is unknown. Hydrocephalus can lead to problems that affect everyday life such as difficulties with concentration and short term memory, co-ordination, motivation, and organisational skills. Most forms of hydrocephalus require treatment and this is usually surgical and involves inserting a shunting device to drain the excess CSF.
We hold information sessions on subjects such as continence, school transition, PIP payments and more, usually as part of an activity day. If you would like to request information please get in touch with us.