We run information events on issues such as continence and education, and with high profile speakers such as paediatricians and neurologists. Held in accessible venues with facilities for children, they are open to all members – adults and children. 

We hold various events & activities throughout the year for children and adults with spina bifida and/or hydrocephalus and their families and carers. We have parties, theatre trips, family activity days, lunches out and more. We love to hear your requests.

We hold a regular stay and play support group for children who have spina bifida and/or hydrocephalus and their families. This is held bi monthly at the Vinery Centre in Leeds. This is a great opportunity to meet other families while the kids play together.

​We keep you in the know about issues around disability and our charity with regular newsletters and emails. We work closely with Shine and can refer your information request onto the relevant team.

We research grants and make funding applications to benefit our membership, such as to set up specific support groups, fund group outings and trips and make new ideas possible.We also have a community fundraising committee.

Thanks to funding from the Big Lottery Fund, we are able to set up a Parent Buddy scheme. Contact us to find out more.​

Working closely on our connections with other charities working to the same aim, such as Shine means members are able to access other activities such as their York Little Stars and Bradford Under 5 group. We also deliver events in collaboration.

​We are in the process of setting up a youth club for older children, teens and young adults. This will be a chance to make new friends and try out new activities. We would love young adults to volunteer to help lead.









You can contact us by email at

You can contact us by phone on


You can contact us by mail at;

25 Hornbeam Court, Oxford Avenue, Guiseley, Leeds, LS20 9BW