How We Help


How We Help


Information Events

We run regular events with high profile speakers such as paediatricians and neurologists. Held in accessible venues with facilities for children, they are open to all members – adults and children. We are planning our next information event for the early summer. Any requests? Just get in touch.

Social Events/Activities

We hold various events & activities throughout the year for children and adults with spina bifida and/or hydrocephalus and their families and carers. We have ten pin bowling, theatre trips, family activity days, lunches out and more. See the events page on this website, check your inbox and visit facebook to keep informed.

Stay and Play

We hold a monthly Stay & Play Support group for children aged 0-5’s and their families on the first Saturday of every month at the Vinery Centre in Leeds. This is a great opportunity to meet other families and chat to our parent volunteers while the kids play in the soft play area. Refreshments and biscuits are provided. Please drop an email to organiser Gillian at so we know how many families to expect. 

In Partnership with Shine
Shine’s support services coordinator for the northern region is Kathy Bhogul.
Email: 07710154826